The research question
How does symptom burden vary through the month and across treatment routines?
Proposed design
Prospective symptom diary with baseline care-history questions and periodic function assessments.
Illustrative design: 8- to 12-week diary; setup and recruitment are scoped separately.
Data to collect
- Pelvic pain and timing
- Bleeding and cycle context when relevant
- Fatigue and sleep
- Treatment use and activity interference
Planned outputs
- Within-person symptom patterns
- Reported treatment burden
- Work and daily-function summaries
What we confirm with you
We agree the population, sample size, country, collection tools, analysis plan and budget. Collection starts after the required consent, ethics or other permissions and a signed scope are in place.
- Agree diagnosis verification and sensitive-data handling
- Use appropriate measures and permissions
- Avoid inferring fertility or clinical disease severity from diary entries
Clinical records, laboratory results, photographs and device integrations are included only when access, collection quality and permitted use have been verified. Self-reported findings are identified as such.
Research context
These published sources explain the research need or method. They are not RIDLY customers, endorsements or purchase commitments.
- Canadian endometriosis fatigue and productivity study
This AbbVie-affiliated survey measured fatigue and productivity among Canadian women reporting an endometriosis diagnosis.
Related dataset profiles
For an existing-data inquiry, start with a coverage review.